Out with Prostate Cancer

Resources and links

Prostate Cancer UK

We want a future where lives are not limited by prostate cancer.

To have the biggest possible impact for men with prostate cancer, those not yet diagnosed and future generations, we need to tackle these priorities.

  • Get men diagnosed earlier
  • Get men diagnosed more accurately
  • Get better treatments
  • Get better support

Macmillan Cancer Support

At Macmillan, we understand the many ways in which a cancer diagnosis can affect your life.

From the moment you're diagnosed, through your treatment and beyond, we're right there with you, offering emotional, physical and financial support.

We are millions of people affected by cancer, supporters, professionals, volunteers, and campaigners. We all have one thing in common – our care and support for people living with cancer.

Tackle Prostate Cancer

The only patient-led UK-wide charity representing people with prostate cancer and those who care for them.

Our key aims are to:

  • Act as the voice of prostate cancer patients and their families
  • Encourage and assist the formation and development of patient-led support groups throughout the UK
  • Raise awareness of prostate cancer in the general population
  • Encourage improvement of health services and conduct campaigns to improve the wellbeing of those affected by prostate cancer

LGBT Walnut

LGBT Prostate Cancer Support in London, 

LGBT Walnut is an independent support group for any LGBT person affected by prostate cancer. The group started as part of the METRO Walnut project at METRO Charity. METRO still employs the Prostate Cancer Peer Support Group Coordinator, Simon Faulkner, and provides meeting space at their Vauxhall site. 

LGBT Walnut mainly covers the Greater London area and parts of South-East England but we welcome you wherever you are based. There are also other Walnut groups in Dorset and Eastbourne, although we are independent of one another.

Marie Curie

Helper Service based in Bradford

Our Helper Service is a befriending service offering face to face visits giving companionship, emotional support, practical help and respite support.  We have a team of volunteers, both male and female, with ages that range from 18 to 80 and we have speakers of Urdu, Hindu. Punjabi and Portuguese.  These volunteers are full trained and DBS checked and give weekly 3 hour visits offering everything from a chat and a cup of tea with someone to visiting the theatre.  Matches with volunteers are made carefully with a volunteer in their locality and with similar interests and hobbies.  

Referrals can be easily made by either emailing me on frances.glover@mariecurie.org.uk or telephone 07747 631097.  They do not need a clinical referral, we do take self referrals or you may wish to refer someone yourself.

Resources


some academic papers or other documents of interest.


Click on the headings to open the PDFs

Sexual health and treatment related sexual disfunction

Sexual function is a vital aspect of human health and a critical
component of cancer survivorship, and understanding the potential
effects of different treatment modalities on sexual health is crucial

Adequacy of sexual care information given to prostate cancer patients receiving radical external beam radiotherapy

Despite the acknowledged value of providing prostate radiotherapy patients with sexual dysfunction information, there is little evidence related to patient perceptions of this or the extent to which information is provided to them.

Threat of Sexual Disqualification

The Consequences of Erectile Dysfunction and Other Sexual Changes for Gay and Bisexual Men With Prostate Cancer

How can healthcare services support LGBTQ+ patients with prostate cancer?

Issues surrounding how gay, bisexual and queer-identifying people are supported during their prostate cancer treatment.

Let’s talk about sex

Personalizing cancer treatment doesn’t only mean matching a drug to molecular markers on a tumour — it should also take into account a person’s sexual identity, interests and wishes.

Guidance on How Long Men Should Abstain from Receiving Anal Sex before, During and after Interventions for Prostate Cancer

In both quantitative and qualitative
studies, gay and bisexual men have reported worse sexual function, ejaculatory function and ejaculatory bother compared with their heterosexual counterparts

Let’s talk about gay sex

gay and bisexual men’s sexual communication with healthcare professionals after prostate cancer

Unrecognized sexual dysfunction

Little is known about how PCa treatment affects the sexualfunction of gay and bisexual men. The reason is that the assessment of sexual dysfunction is largely focused on heteronormative assumptions of sex.

Gay men and prostate cancer

Prostate cancer (PCa) is of paramount concern to men’s health, with a high prevalence in Western societies. While previous research has examined PCa from a variety of standpoints, this literature fails to take into account the difficulties encountered by marginalized groups of men, such as gay men.